Regionale DIAD-familieconferentie 2023: een nieuw tijdperk

De regionale DIAD-familieconferentie van 2023 voor gezinnen die in Europa wonen, werd gehouden zaterdag 15 juli in Amsterdam, Nederland. De opname van het ochtendprogramma wordt in augustus op deze pagina geplaatst. Klik hier voor biografieën van conferentiesprekers.

AGENDA

9:00-0:15 Welkomstwoord: Eric McDade, DO, Dagvoorzitter, Washington University in St. Louis; Maria Carrillo, PhD, Alzheimer’s Association

9:15-9:25 Familiepresentatie: Ingrid van Goor

9:25-9:45 Amyloïdemodificerende therapieën begrijpen: focus op bèta-amyloïde: Jort Vijverberg, MD, PhD, Amsterdam Universitair Medische Centra

9:45-10:25 Q&A – Geleide Discussie: Bèta-Amyloïdemodificerende Therapieën Begrijpen
Gespreksleider: Eric McDade, DO
Panelgasten: Jort Vijverberg, MD, PhD; Ingrid van Goor; Jetske van der Schaar, MSc, Amsterdam University Medical Centers; Michael Irizarry, MD, MPH, Eisai; Mathias Jucker, PhD, University of Tübingen; Egbert de Groot, PhD, Zorginstituut Nederland; Randall Bateman, MD, Washington University in St. Louis

10:55-11:05 Familiepresentatie

11:05-11:25 Een CRISPR-gebaseerde therapeutische strategie voor de ziekte van Alzheimer: Subhojit Roy, MD, PhD, University of California, San Diego

11:25-12:05 Q&A – Geleide Discussie: Genetisch Gerichte Geneesmiddelentechnologieën Begrijpen
Gespreksleider: Eric McDade, DO
Panelgasten: Subhojit Roy, MD, PhD; Alicia Brasch; Selina Wray, PhD, University College London; Catherine Mummery, PhD, University College London; Bret Bostwick, MD, Alnylam Pharmaceuticals

12:05-12:15 Familiepresentatie

12:15-12:45 DIAN-TU Updates: Van biomarkers tot behandel- en preventie-onderzoeken: Randall Bateman, MD & Eric McDade, DO; Washington University in St. Louis

12:45 Slotwoord: Eric McDade, DO & Marty Reiswig, BS, Youngtimers

The afternoon concludes with practical information sessions for family members only. These sessions are only available to those attending the conference in person (no livestreaming). Topics include:

1. Maintaining Brain Health through Lifestyle – Lindsay Hohsfield, PhD
2. Life Planning with a Positive Genetic Result – Freek Gillissen, BA
3. DIAN-TU Trial Participation: Open Forum for Questions – Randall Bateman, MD; Eric McDade, DO; Jorge J. Llibre-Guerra, MD; Johannes Levin, MD
4. Navigating the Journey of Grief – Lenneke Post, MA
5. Family Dynamics and Talking to Children – Vivianne Teeuwen, BS
6. German Family Support – German-language conversation space – Mathias Jucker, PhD
7. Drop-in support session with topic tables
a. Living with symptoms: Discussion space for symptomatic family members
b. Caregiving: Discussion space for caregivers
c. Family planning: Discussion space for navigating fertility decisions
d. Catching your breath: Prompts for journaling or self-guided garden walk

Reception for family members and researchers

Funding for this conference was made possible by the Alzheimer’s Association in the United States and the DIAN Observational Study (NIH#:U19AG032438). The views expressed by the authors of written conference materials or publications and by speakers and moderators do not necessarily reflect the official views of the United States National Institutes of Health.