Many individuals who join the DIAN Expanded Registry do not know if a genetic mutation is the cause of the Alzheimer’s disease experienced in their family.  For families who qualify, we offer potential participation in research to find out this information via the Exploratory Genetic Counseling and Testing (GCT) program.

Eligibility

  1. At least two family members in two successive generations (i.e. parent and their child) who have had symptoms of Alzheimer’s disease that began before the age of 60.
  2. Someone in the family currently living with Alzheimer’s disease who is willing to have genetic counseling and submit a blood sample for genetic testing 
    OR
    Tissue from a deceased family member (after autopsy) who had Alzheimer’s disease which is available for testing
An example of a family tree, or pedigree. The darkened shapes represent those family members affected by early-onset Alzheimer’s disease across three generations.

More information

Contact the DIAN Expanded Registry team:

Individuals & Families

Individuals & Families

Join the DIAN Expanded Registry

Your participation and collaboration help to advance both the understanding and treatment of DIAD. Your enrollment will determine your eligibility for DIAD research studies and clinical trials.

Learn More Register Now