Family Voices

Meet a man affected by Dominantly Inherited Alzheimer’s Disease and learn why he participates in the DIAN clinical trial.


Individuals and families that are impacted by inherited Alzheimer’s disease often share their experiences in conferences or with the media and public. These families have graciously agreed to also showcase their stories here for other DIAD families and health professionals.


Seeking Alzheimer’s clues from few who escape genetic fate
AP News, March 16, 2023
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A family looks for answers into why so many of them develop Alzheimer’s disease
NPR, Morning Edition, August 25, 2022
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S2 Ep6: Dominantly Inherited Alzheimer’s Disease: A View From Within
Podcast featuring Dr. Randall Bateman, Dr. Roy Yaari and family member Daisy Duarte 
Lilly, July 2020


Interview with family member on genetic counseling and testing


Wash U leading worldwide Alzheimer’s study
KSDK, St. Louis Local News, October 15, 2019
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The heartbreak and heroism of being the X-Men in Alzheimer’s disease
St. Louis Post-Dispatch, February 10, 2019
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Luna, el primer perro de asistencia para una enferma de Alzheimer
COPE de la Sierra, 6 de febrero, 2019
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Eso no se pregunta: Alzheimer
TeleMadrid, 27 de enero, 2019
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‘Everything is for Alexis’: She is not yet 2. Her father fears she will have Alzheimer’s.
The Washington Post, December 8, 2018
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Family member presentation to World Dementia Council meeting
London, December 5, 2018 (Shared with permission of presenter and WDC)


Ana y su marido hacen llorar a Toñi al hablar del Alzheimer: “Tu enfermedad es mi enfermedad”
Telecinco, 22 de sept, 2018
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Ana recibe el mejor regalo: Banu es un perro que va a ayudarle a sobrellevar el alzheimer
Telecinco, 22 de sept, 2018
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Rara mutación genética provoca enfermedad en personas jóvenes
Telemundo, 6 de febrero, 2018
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Woman facing Alzheimer’s head on
KSDK – St. Louis local news, November 9, 2017
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Jetske en Jeroen zijn dragers van het Alzheimer-gen
PAUW BNNVARA 12 oktober 2017
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Three generations of a British family are helping the fight against Alzheimer’s
iNews, The Essential Daily Briefing, July 2017
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Early Alzheimer’s families hold key to beating dementia
The Times of London, July 15, 2017
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Reason to Hope 2017
Alzheimer’s Association Colorado Chapter
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6 Siblings Living In The Shadow Of Alzheimer’s
TODAY, March 30 2017
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The fight against Alzheimer’s: ‘Every Minute Counts’ reveals latest developments
TODAY, March 2017
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DIAN-TU trial participant and his wife talk about how to stay motivated
Live webinar January 25, 2017, St. Louis, MO


Every Minute Counts
PBS, January 2017
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Early Alzheimer’s Gene Is A Curse For Families, A Gift For Science
NPR, December 2016
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The Hardest Test: Tucson family has hereditary Alzheimer’s
Arizona Daily Star, February 20, 2016
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34-year-old woman travels to Wash U for Alzheimer’s trial
KSDK, November 2015
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Family with history of rare Alzheimer’s gene hopes for a cure
CBS News, October 2015
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Family places hope in drug trial for hereditary Alzheimer’s gene mutation
CBC, April 2016
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Alzheimer’s Disease: Daisy’s Story
HECTV, March 2016
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Man looking for answers with new Alzheimer’s study
Global News, March 2016
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Alzheimer’s: New clues in search for cure
CBS News, October 2011
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