2016 DIAD Family Conference: Too Young to Forget

Sponsored by the Dominantly Inherited Alzheimer Network-Trials Unit (DIAN-TU) and the Alzheimer’s Association

Held in July 2016, the international conference gave DIAD families the opportunity to meet face to face and learn about the current state of research.

Presentation videos and pdfs


Speakers: Randall Bateman, MD, Washington University School of Medicine, St. Louis, MO and Maria Carrillo, PhD, Alzheimer’s Association

Family presentations

Living with early onset AD
Experience participating in research View pdf »
View from a young family member/ADVOCACY View pdf »
Caregiver Perspective View pdf »

Alzheimer’s overview

State of Alzheimer’s disease research (pdf)
Speaker: Serge Gauthier, CM, MD, FRCPC, McGill University, Quebec, Canada
View pdf »


DIAN Observational Study and DIAN-Trials Unit update
Speaker: Randall Bateman, MD
View pdf »


The DIAN Expanded Registry

Questions and answers

Global AD ecosystem, advocacy and public policy

Amplifying the voice of those with early onset AD in the context of global activity (pdf)
Speaker: Yves Joanette, PhD, FCAHS, World Dementia Council
View pdf »

Drug development and approval

Joint pharma presentation on advocacy (pdf)
Speaker: Rachel J. Schindler, MD, Pfizer and Johan Luthman, MD, PhD, Eisai
View pdf »


Drug re-purposing for use in AD population (pdf)
Speaker: Barry D. Greenberg, PhD, University Health Network, Toronto
View pdf »


Panel discussion
Health Canada: Maribeth Lazarro, PhD
NIH: Laurie M. Ryan, PhD
FDA: Billy Dunn, MD
Pfizer: Rachel J. Schindler, MD
Eisai: Johan Luthman, MD, PhD

Emerging research topics

Non-pharmacological approaches and modifiable risk factors
Speaker: Carl W. Cotman, PhD, University of California, Irvine
View pdf »

Caregiving and long-term care

Short and long-term options, managing challenges, caring for the caregiver, Q & A (pdf)
Speakers: Sam Fazio, PhD, and Beth Kallmyer, MSW, Alzheimer’s Association
View pdf »

Legal and financial matters

Power of attorney, financial planning, insurance, Q & A (pdf)
Speaker: Judith A Wahl, LLB, Advocacy Centre for the Elderly
View pdf »

Ethical issues in Alzheimer’s disease genetics and biomarker disclosure

Speakers: Jason Karlawish, MD, University of Pennsylvania and Joshua Grill, PhD, University of California, Irvine
View pdf »

Closing remarks