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The DIAN Expanded Registry
The Registry is an international collection of individuals and families affected by DIAD and researchers studying the disease. Participating researchers use the Registry to help identify potential participants for clinical trials and the DIAN Observational Study and to find collaborators. Physicians, researchers, genetic counselors and other health professionals are all invited to join the Registry.
Our clinical trials test potential DIAD preventive strategies. Trial sites are in multiple countries around the world.
The DIAN Observational Study
This longitudinal observational study of DIAD families from around the world enables researchers to monitor and identify changes in individuals who carry one of the gene mutations known to cause inherited forms of Alzheimer’s disease. Participating researchers have access to a repository of clinical data and a tissue core for collaborative research efforts.