Voci di famiglia

Conosciamo un uomo affetto dalla malattia di Alzheimer di tipo ereditario dominante (Dominantly Inherited Alzheimer’s Disease, DIAD) e scopriamo perché partecipa alla sperimentazione clinica DIAN (Rete per l’Alzheimer di tipo ereditario dominante).

Le persone e le famiglie colpite dalla malattia di Alzheimer ereditaria spesso condividono le loro esperienze attraverso conferenze, mezzi di comunicazione o rivolgendosi direttamente al pubblico. Queste famiglie hanno cortesemente accettato di raccontare qui le loro storie rivolgendosi ad altre famiglie colpite dalla malattia di Alzheimer di tipo ereditario dominante (DIAD) e agli operatori sanitari.

Interview with family member on genetic counseling and testing

Rara mutación genética provoca enfermedad en personas jóvenes
Telemundo, 6 de febrero, 2018
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Woman facing Alzheimer’s head on
KSDK – St. Louis local news, November 9, 2017
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Jetske en Jeroen zijn dragers van het Alzheimer-gen
PAUW BNNVARA 12 oktober 2017
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Three generations of a British family are helping the fight against Alzheimer’s
iNews, The Essential Daily Briefing, July 2017
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Early Alzheimer’s families hold key to beating dementia
The Times of London, July 15, 2017
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Reason to Hope 2017
Alzheimer’s Association Colorado Chapter
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6 Siblings Living In The Shadow Of Alzheimer’s
TODAY, March 30 2017
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The fight against Alzheimer’s: ‘Every Minute Counts’ reveals latest developments
TODAY, March 2017
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DIAN-TU trial participant and his wife talk about how to stay motivated
Live webinar January 25, 2017, St. Louis, MO

Every Minute Counts
PBS, January 2017
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Early Alzheimer’s Gene Is A Curse For Families, A Gift For Science
NPR, December 2016
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The Hardest Test: Tucson family has hereditary Alzheimer’s
Arizona Daily Star, February 20, 2016
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34-year-old woman travels to Wash U for Alzheimer’s trial
KSDK, November 2015
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Family with history of rare Alzheimer’s gene hopes for a cure
CBS News, October 2015
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Family places hope in drug trial for hereditary Alzheimer’s gene mutation
CBC, April 2016
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Alzheimer’s Disease: Daisy’s Story
HECTV, March 2016
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Man looking for answers with new Alzheimer’s study
Global News, March 2016
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