Conferenza regionale sulla famiglia DIAD 2023: una nuova era

Si è tenuto il 2023 il convegno regionale DIAD family per le famiglie che vivono in Europa sabato 15 luglio ad Amsterdam, nei Paesi Bassi. La registrazione del programma mattutino verrà pubblicata su questa pagina nel mese di agosto. Clicca qui per le biografie dei relatori della conferenza.

AGENDA (CEST)

9:00-9:15 Saluti Di Benvenuto: Eric McDade, DO, Moderatore, Washington University in St. Louis; Maria Carrillo, PhD, Alzheimer’s Association

9:15-9:25 Presentazione Della Famiglia: Ingrid van Goor

9:25-9:45 Comprendere le terapie che modificano l’amiloide: approfondimento sugli anticorpi anti-amiloide: Jort Vijverberg, MD, PhD, Amsterdam University Medical Centers

9:45-10:25 Q&A (Domande e Risposte) – Discussione Guidata: Comprendere Le Terapie Che Modificano L’amiloide
Moderatore: Eric McDade, DO
Relatori: Jort Vijverberg, MD, PhD; Ingrid van Goor; Jetske van der Schaar, MSc, Amsterdam University Medical Centers; Michael Irizarry, MD, MPH, Eisai; Mathias Jucker, PhD, University of Tübingen; Egbert de Groot, PhD, Zorginstituut Nederland; Randall Bateman, MD, Washington University in St. Louis

10:55-11:05 Presentazione Della Famiglia

11:05-11:25 Una strategia terapeutica basata su CRISPR per la malattia di Alzheimer: Subhojit Roy, MD, PhD, University of California, San Diego

11:25-12:05 Q&A (Domande e Risposte) – Discussione Guidata: Comprendere Le Tecnologie Dei Farmaci A Bersaglio Genetico
Moderatore: Eric McDade, DO
Relatori: Subhojit Roy, MD, PhD; Alicia Brasch; Selina Wray, PhD, University College London; Catherine Mummery, PhD, University College London; Bret Bostwick, MD, Alnylam Pharmaceuticals

12:05-12:15 Presentazione Della Famiglia

12:15-12:45 Aggiornamenti DIAN-TU: Dai biomarcatori agli studi clinici di prevenzione e trattamento: Randall Bateman, MD & Eric McDade, DO; Washington University in St. Louis

12:45 Osservazioni Conclusive: Eric McDade, DO & Marty Reiswig, BS, Youngtimers

The afternoon concludes with practical information sessions for family members only. These sessions are only available to those attending the conference in person (no livestreaming). Topics include:

1. Maintaining Brain Health through Lifestyle – Lindsay Hohsfield, PhD
2. Life Planning with a Positive Genetic Result – Freek Gillissen, BA
3. DIAN-TU Trial Participation: Open Forum for Questions – Randall Bateman, MD; Eric McDade, DO; Jorge J. Llibre-Guerra, MD; Johannes Levin, MD
4. Navigating the Journey of Grief – Lenneke Post, MA
5. Family Dynamics and Talking to Children – Vivianne Teeuwen, BS
6. German Family Support – German-language conversation space – Mathias Jucker, PhD
7. Drop-in support session with topic tables
a. Living with symptoms: Discussion space for symptomatic family members
b. Caregiving: Discussion space for caregivers
c. Family planning: Discussion space for navigating fertility decisions
d. Catching your breath: Prompts for journaling or self-guided garden walk

Reception for family members and researchers

Funding for this conference was made possible by the Alzheimer’s Association in the United States and the DIAN Observational Study (NIH#:U19AG032438). The views expressed by the authors of written conference materials or publications and by speakers and moderators do not necessarily reflect the official views of the United States National Institutes of Health.