2017 DIAD Family Conference Agenda

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Master of Ceremonies

Eric McDade, D.O., Washington University School of Medicine, St. Louis, MO

Welcome remarks and updates

Randall Bateman, M.D. – Washington University School of Medicine, St. Louis, MO
Dean Hartley, Ph.D., Alzheimer’s Association
Richard Hodes, M.D., National Institute on Aging

The genetics of DIAD: then and now

Alison Goate, D.Phil., Icahn School of Medicine at Mount Sinai

DIAD families as the Key to the Cure: then and now

Nick Fox, M.D., University College London (UCL)

Family presentation

Q & A – Guided discussion: Participating in DIAD research: risk, challenges and the way forward

Moderator: Nick Fox

  • Alison Goate
  • Natalie Ryan
  • John Morris
  • John Hardy
  • Laurie Ryan
  • Family member

Preclinical aspects: How lumbar punctures have and are advancing the field

Henrik Zetterberg, M.D., University of Gothenburg, Sweden & UCL

Preclinical aspects: Where are we with trials?

Eric McDade, D.O., Washington University in St. Louis

Q & A – Guided discussion: The critical role of DIAD research in pre-symptomatic Alzheimer’s disease

Moderator: Randall Bateman

  • Henrik Zetterberg
  • Eric McDade
  • Pierre Tariot
  • Gary Romano
  • Rachelle Doody
  • Eric Siemers
  • Jason Hassenstab
  • Family member

Family presentation

Lunch with speakers/Poster session

Family panel on genetic status

Moderator: Susie Henley

Support sessions

1. Symptomatic family members: symptomatic individuals only
2. Symptomatic family members: with family members present
3. Asymptomatic, at-risk family members (2 groups)
4. Supporting family/friends of symptomatic individuals (2 groups)

Concurrent practical information session topics

    • Talking to children: Christine Patch, Ph.D., R.N., Registered Genetic Counselor; Genomics England & King’s College London
    • Living with risk: Susie Henley, Ph.D., DClinPsy; University College London Hospital (UCLH)
    • Part I: Care Act 2014 & paying for care (UK-specific): Sara Wilcox, CEO of ‘Pathways through Dementia’
    • Part II: Mental Capacity Act & decision-making for loved ones living with AD (finance / health & welfare; UK-specific): Sara Wilcox
    • Live-in home care options and possibilities for people with AD: Jane Pritchard, Consultant Admiral Nurse, The Good Care Group

Closing Remarks

Eric McDade