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Individuals and families impacted by inherited Alzheimer’s disease often share their experiences in conferences or with the media and public. These families have graciously agreed to also showcase their stories here for other DIAD families and health professionals.
2024 Family Conference: Family Presentation 3
Family Conference 2024 (password protected)
2024 Family Presentation: Jessica Bender
Family Conference 2024
2024 Family Presentation: Tasha Johnson
Family Conference 2024
2023 Family Presentation: Normalize the Truth (Spanish)
Family Conference 2024 (password protected)
2023 Family Presentation: Normalize the Truth
Family Conference 2024 (password protected)
Family Presentation: The Acceptance of Uncertainty
Family Conference 2023
2023 Family Presentation: Ingrid van Goor
Family Conference 2023
Seeking Alzheimer’s clues from few who escape genetic fate
From AP News, March 2023
2022 Family Presentation: Ellyn
Family Conference 2024 (password protected)
Young People’s Stories of Experiencing Parental Dementia
Family Conference 2022
2022 Family Presentation: Andres Martin
Family Conference 2022
2022 Family Presentation: Sandra D. and Daphnée A.
Family Conference 2022
A family looks for answers into why so many of them develop Alzheimer’s disease
Audio: NPR, Morning Edition, August 25 2022
Family Presentation: 2020 Virtual DIAD Family Conference
Family Conference 2020
DIAN Video: Genetic Counseling & Testing
Interview with a family member
Dominantly Inherited Alzheimer’s Disease: A View From Within
Audio: Featuring Dr. Randall Bateman, Dr. Roy Yaari and family member Daisy Duarte
Lilly, July 2020
WashU leading worldwide Alzheimer’s study
KSDK, St. Louis Local News, October 15, 2019
Family Presentation: The Journey of a DIAD Child
Family Conference 2019
Family Presentation: Brenda Monserrat
Family Conference 2019
Family Presentation: Dan Chrysler
Family Conference 2019
The heartbreak and heroism of being the X-Men in Alzheimer’s disease
St. Louis Post-Dispatch, February 10, 2019
‘Everything is for Alexis’: She is not yet 2. Her father fears she will have Alzheimer’s.
The Washington Post, December 8, 2018
Family member presentation to World Dementia Council meeting
London, December 5, 2018 (Shared with permission of presenter and WDC)
Family Presentation: Jetske van der Schaar
Family Conference 2018
Family Presentation: Bryan Salter and Carrie Salter-Richardson
Family Conference 2018
Woman facing Alzheimer’s head on
KSDK – St. Louis local news, November 9, 2017
DIAN-TU trial participant and his wife talk about how to stay motivated
Webinar in St. Louis, MO 2017
The Family Business: A Journey into Alzheimer’s Research
Family Conference 2017
Family Presentation: Sophie Leggett
Family Conference 2017
Three generations of a British family are helping the fight against Alzheimer’s
iNews, The Essential Daily Briefing, July 2017
Early Alzheimer’s families hold key to beating dementia
The Times of London, July 15, 2017
6 Siblings Living In The Shadow Of Alzheimer’s
TODAY, March 30 2017
Man looking for answers with new Alzheimer’s study
Global News, March 2016
Early Alzheimer’s Gene Is A Curse For Families, A Gift For Science
NPR, December 2016
DIAN Video: What does it mean to have DIAD in your family?
Brian’s Story; 2016
2016 Family Member Presentations
Family Conference 2016
Family Presentation: Joanne Harrigan
Family Conference 2015
Family Presentation: Compassionate Use
Family Conference 2015
Family Presentation: Unraveling
Family Conference 2015
Family Presentation: The Silver Lining
Family Conference 2015
Family Presentation: Renee Perkins
Family Conference 2015
Family with history of rare Alzheimer’s gene hopes for a cure
CBS News, October 2015
Alzheimer’s: New clues in search for cure
CBS News, October 2011