Family Voices
Meet a man affected by Dominantly Inherited Alzheimer’s Disease and learn why he participates in the DIAN clinical trial.
Individuals and families that are impacted by inherited Alzheimer’s disease often share their experiences in conferences or with the media and public. These families have graciously agreed to also showcase their stories here for other DIAD families and health professionals.
Seeking Alzheimer’s clues from few who escape genetic fate
AP News, March 16, 2023
View story
A family looks for answers into why so many of them develop Alzheimer’s disease
NPR, Morning Edition, August 25, 2022
View story
S2 Ep6: Dominantly Inherited Alzheimer’s Disease: A View From Within
Podcast featuring Dr. Randall Bateman, Dr. Roy Yaari and family member Daisy Duarte
Lilly, July 2020
Interview with family member on genetic counseling and testing
Wash U leading worldwide Alzheimer’s study
KSDK, St. Louis Local News, October 15, 2019
View story
The heartbreak and heroism of being the X-Men in Alzheimer’s disease
St. Louis Post-Dispatch, February 10, 2019
View story
Luna, el primer perro de asistencia para una enferma de Alzheimer
COPE de la Sierra, 6 de febrero, 2019
Ver el artículo
Eso no se pregunta: Alzheimer
TeleMadrid, 27 de enero, 2019
Ver el artículo
‘Everything is for Alexis’: She is not yet 2. Her father fears she will have Alzheimer’s.
The Washington Post, December 8, 2018
View story
Family member presentation to World Dementia Council meeting
London, December 5, 2018 (Shared with permission of presenter and WDC)
Ana y su marido hacen llorar a Toñi al hablar del Alzheimer: “Tu enfermedad es mi enfermedad”
Telecinco, 22 de sept, 2018
Ver el artículo
Ana recibe el mejor regalo: Banu es un perro que va a ayudarle a sobrellevar el alzheimer
Telecinco, 22 de sept, 2018
Ver el artículo
Rara mutación genética provoca enfermedad en personas jóvenes
Telemundo, 6 de febrero, 2018
Ver el artículo
Woman facing Alzheimer’s head on
KSDK – St. Louis local news, November 9, 2017
View story
Jetske en Jeroen zijn dragers van het Alzheimer-gen
PAUW BNNVARA 12 oktober 2017
View story
Three generations of a British family are helping the fight against Alzheimer’s
iNews, The Essential Daily Briefing, July 2017
View story
Early Alzheimer’s families hold key to beating dementia
The Times of London, July 15, 2017
View story
Reason to Hope 2017
Alzheimer’s Association Colorado Chapter
View story
6 Siblings Living In The Shadow Of Alzheimer’s
TODAY, March 30 2017
View story
The fight against Alzheimer’s: ‘Every Minute Counts’ reveals latest developments
TODAY, March 2017
View story
DIAN-TU trial participant and his wife talk about how to stay motivated
Live webinar January 25, 2017, St. Louis, MO
Every Minute Counts
PBS, January 2017
View story »
Early Alzheimer’s Gene Is A Curse For Families, A Gift For Science
NPR, December 2016
View story »
The Hardest Test: Tucson family has hereditary Alzheimer’s
Arizona Daily Star, February 20, 2016
View story »
34-year-old woman travels to Wash U for Alzheimer’s trial
KSDK, November 2015
View story »
Family with history of rare Alzheimer’s gene hopes for a cure
CBS News, October 2015
View story »
Family places hope in drug trial for hereditary Alzheimer’s gene mutation
CBC, April 2016
View story »
Alzheimer’s Disease: Daisy’s Story
HECTV, March 2016
View story »
Man looking for answers with new Alzheimer’s study
Global News, March 2016
View story »
Alzheimer’s: New clues in search for cure
CBS News, October 2011
View story »