2016 DIAD Family Conference Agenda

<< Back to 2016 Family Conference

Welcome/introductions

Randall Bateman, MD – Washington University School of Medicine, St. Louis, MO

Maria Carrillo, PhD – Alzheimer’s Association

Presentations

Family presentation: living with early onset AD

Alzheimer’s overview

State of Alzheimer’s disease research

  • Serge Gauthier, CM, MD, FRCPC – McGill University, Quebec, Canada
  • DIAN Observational Study and DIAN-Trials Unit update
  • Randall Bateman, MD
  • Q & A

Family presentation: experience participating in research

Family Presentation: View from a young family member/ADVOCACY

Global Ad Ecosystem, Advocacy and Public Policy

  • Amplifying the voice of those with early onset AD in the context of global activity: Yves Joanette, PhD, FCAHS – World Dementia Council
  • Q & A

Drug development and approval

Joint Pharma Presentation on Advocacy

  • Rachel J. Schindler, MD – Pfizer
  • Johan Luthman, MD, PhD – Eisai
  • Drug re-purposing for use in AD population
  • Barry D. Greenberg, PhD – University Health Network, Toronto

Panel discussion

  • Health Canada:  Maribeth Lazarro, PhD
  • NIH:  Laurie M. Ryan, PhD
  • FDA:  Billy Dunn, MD
  • Pfizer:  Rachel J. Schindler, MD
  • Eisai:  Johan Luthman, MD, PhD

Lunch and meet and greet with Alzheimer’s researchers

Emerging research topics

  • Non-pharmacological approaches and modifiable risk factors
  • Carl W. Cotman, PhD – University of California, Irvine
  • Q & A

Family presentation: caregiver perspective

Caregiving and Long-Term Care

Sam Fazio, PhD, and Beth Kallmyer, MSW – Alzheimer’s Association

  • Short and long-term options
  • Managing challenges
  • Caring for the caregiver
  • Q & A

Legal and financial matters

Judith A Wahl, LLB – Advocacy Centre for the Elderly

  • Power of attorney
  • Financial planning
  • Insurance
  • Q & A

Ethical issues in Alzheimer’s diseases genetics and biomarker disclosure

Jason Karlawish, MD – University of Pennsylvania

Joshua Grill, PhD – University of California, Irvine

  • Q & A

Support sessions

  • Symptomatic family members
    • With family members present
    • Symptomatic individuals only
  • Asymptomatic, at-risk family members (2 groups)
  • Supporting family/friends
    • Of symptomatic individuals
    • Of asymptomatic individuals