DIAN-TU Investigator Resources
The Dominantly Inherited Alzheimer Network Trials Unit (DIAN-TU) is committed to data and biospecimen sharing and promotes collaborative, high quality dissemination of DIAN-TU trial findings in a timely, accurate, and just manner while protecting trial integrity and participant confidentiality. To further these goals, the DIAN-TU has established policies related to the use of DIAN-TU data and biospecimens, publication, authorship, and citations of support. These policies provide structure to the data and biospecimen request and publication processes, ensure protection of trial integrity, provide respect for intellectual contributions, define standards regarding security and confidentiality, ensure appropriate acknowledgment of support and key stakeholders, and provide a mechanism for tracking productivity. They adhere to the NIH Policy for Data Management and Sharing, the Collaboration for Alzheimer’s Prevention data sharing principles1 and the International Committee of Medical Journal Editors (ICMJE) criteria for authorship.
READ DIAN-TU Policies document which includes the following policies:
- DIAN-TU Data and Biospecimen Sharing Policy
- DIAN-TU Publication Policy
- DIAN-TU Authorship and Citation Policy
These policies apply to anyone (all DIAN-TU Study Team Members and non-DIAN-TU researchers) using or requesting use of DIAN-TU data and/or biospecimens for scientific analyses and all DIAN-TU related publications and communications. DIAN-TU Study Team Members are considered to be those who work or have worked on DIAN-TU trials (e.g. DIAN-TU Core leaders and members, Industry Collaborators, site PIs, partner sites PIs, referring physicians). The complete list can be found at https://dian.wustl.edu/our-research/funding/.
Any deviation from the DIAN-TU Data and Biospecimen Sharing, Publication, Authorship, and Citation Policies may result in actions to further limit the risk to DIAN-TU trials and participants, including barring violators from future data or biospecimen requests, institutional involvement to rectify deviations, and legal action.
Search and request data
If you have questions regarding access to or use of DIAN-TU 001 study data, please contact the DIAN-TU data request team at DIAN-TUDataRequest@wustl.edu
1Weninger S, Carrillo MC, Dunn B, Aisen PS, Bateman RJ, Kotz JD, Langbaum JB, Mills SL, Reiman EM, Sperling R, Santacruz AM, Tariot PN, Welsh-Bohmer KA. Collaboration for Alzheimer’s Prevention: Principles to guide data and sample sharing in preclinical Alzheimer’s disease trials. Alzheimers Dement. 2016 May;12(5):631-2. doi: 10.1016/j.jalz.2016.04.001. PMID: 27157073. PMCID: PMC5111162.