Publication Policy

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Notifications, manuscript review and authorship

The DIAN publication policy applies to all public and scientific communication of unpublished data that result from any DIAN-related activity.  All investigators must abide by established DIAN policies and procedures.  The Principal Investigator of DIAN adjudicates all disputes over leadership of analyses, authorship, etc. and decisions will be final.

Notifications

Communications from the DIAN Study may be classified as press releases, interviews, public web site postings, presentations (includes poster and accompanying abstract) or publications that contain unpublished DIAN data.  The DIAN Administration Core should be notified of all such communications, before they appear or are presented.

Manuscript Review

Manuscripts should be submitted to the DIAN Administration Core at least 4 weeks prior to submission to a journal in order to allow time for review and response to recommendations.

Authorship

Publication authorship

The overarching considerations for DIAN publications are collaboration and inclusiveness. When studies use DIAN data and/or tissue processed by the DIAN Coordinating Center Cores, an invitation to collaborate (meriting authorship) on the manuscript should be issued to respective Core Leaders and Steering Committee members.  DIAN Steering Committee members may also communicate their desire to collaborate when a study is reviewed.  Authorship is determined by current standards of authorship responsibilities (e.g. contribute significantly to the conception, design, execution, and/or analysis and interpretation of data; participate in drafting, reviewing, and/or revising the manuscript for intellectual content).  If included, it is permissible to have the masthead read “First Author, Other Authors” and the DIAN Steering Committee” with the individual Steering Committee members listed in an appropriate section of the presentation or manuscript.  All publications based on DIAN data must include “for the Dominantly Inherited Alzheimer Network (DIAN)” as an author.  If the DIAN group author cannot be used because of journal policies, then all DIAN Steering Committee members should be listed in the acknowledgments and a link to the web page where lists of personnel can be found should be also be included.  A grievance process (beginning with notification of the DIAN Principal Investigator) will hear any authorship issues that arise.

Abstract authorship

The categories and authorship rules for abstracts accompanying presentations are as stated above but may have limitations on the number of authors permitted.  If authorship is limited or impractical to include all authors then “The DIAN Study Group” would be listed as an author.  A full list of members is not included.

Other personnel as authors

The writing group for a manuscript may include trainees, study coordinators, and other personnel as authors, providing that each author was involved in the analysis and writing of the paper.

Arbitration

When conflicts exist regarding DIAN publications, written summaries of the conflict submitted by those involved will be reviewed by the DIAN Administration Core.  The DIAN PI will adjudicate the resolution.  Any DIAN investigator who wishes to opt out of any automatic authorship listing may do so in writing to the DIAN Administration Core.

Press releases, interviews, and presentations

Press releases, interviews, and presentations (without published abstracts) usually do not have authors.  When presentations are accompanied by published abstracts, the authorship rules for the abstracts are the same as for other types of publications, as described in this document

Designation of DIAN Study Members in Supplements to Publications

Supplemental material can accompany manuscripts when space is limited.  Supplemental material for DIAN publications should recognize non-author DIAN members and their contribution to the study.  All professional members who have the approval of the Principal Investigators and have served in a substantial capacity with the study are listed.  Every clinical site and all collaborating entities are listed as participating centers.  The Administration Core will be responsible for maintaining the list of all current DIAN investigators for inclusion in publications and will update this list as needed on the DIAN investigator website.  Those scientific, federal, or commercial organizations providing funding are also recognized.

Required language to appear in acknowledgments of all publications using DIAN resources

“Data collection and sharing for this project was supported by The Dominantly Inherited Alzheimer’s Network (DIAN, U19AG032438) funded by the National Institute on Aging (NIA).  This manuscript has been reviewed by DIAN Study investigators for scientific content and consistency of data interpretation with previous DIAN Study publications.  We acknowledge the altruism of the participants and their families and contributions of the DIAN research and support staff at each of the participating sites for their contributions to this study.”

If the publication includes Data Freeze 6 or later, then the following paragraph should be used:

“Data collection and sharing for this project was supported by The Dominantly Inherited Alzheimer’s Network (DIAN, U19AG032438) funded by the National Institute on Aging (NIA), the German Center for Neurodegenerative Diseases (DZNE), Raul Carrea Institute for Neurological Research (FLENI), Partial support by the Research and Development Grants for Dementia from Japan Agency for Medical Research and Development, AMED, and the Korea Health Technology R&D Project through the Korea Health Industry Development Institute (KHIDI).This manuscript has been reviewed by DIAN Study investigators for scientific content and consistency of data interpretation with previous DIAN Study publications.  We acknowledge the altruism of the participants and their families and contributions of the DIAN research and support staff at each of the participating sites for their contributions to this study.”