2019 DIAD Family Conference Agenda

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Master of Ceremonies

Eric McDade, D.O., Washington University School of Medicine, St. Louis, MO

Welcome remarks

Eric McDade, D.O., Washington University School of Medicine, St. Louis, MO
Maria Carrillo, Ph.D., Alzheimer’s Association

Family presentation

DIAN-TU updates

Randall Bateman, M.D., Washington University School of Medicine, St. Louis

Family presentation

Genetics and Genomics of Alzheimer’s Disease

Alison Goate, D.Phil., Icahn School of Medicine at Mount Sinai

Q & A – Guided discussion: The Genetics of Alzheimer’s Disease

Moderator: Natalie Ryan, M.D.
Panelists:

  • Ken Kosik, M.D.
  • Oscar Harari, Ph.D.
  • Alison Goate, D.Phil.

Family presentation

Therapeutic Updates: Making Sense of Antisense and Other Advancements in Precision Therapies

Tim Miller, M.D., Ph.D., Washington University St. Louis

Q & A – Therapeutic Updates

Moderator: Nick Cochran, Ph.D.
Panelists:

  • Cath Mummery, M.D.
  • Frank Bennett, M.D., Ph.D.
  • Tim Miller, M.D., Ph.D.
  • Serena Hung, M.D.

Family presentation

Primary Prevention Update

Eric McDade, D.O., Washington University School of Medicine, St. Louis

Concurrent practical information session topics

    • Legal/Financial aspects specific to U.S.: Lindsay H. Sanders, Esq., Stone & Sallus, LLP
    • Communicating your genetic risk to children, family, work, and your doctor: Elizabeth Edgerly, Ph.D., Alzheimer’s Association
    • Living well to delay AD: Sam Fazio, Ph.D., Alzheimer’s Association
    • What to expect in a genetic counseling session: Jill Goldman, M.S., M.Phil., C.G.C, Columbia University Medical Center
    • Family planning/reproductive considerations for individuals in the DIAD community: Jill Goldman, M.S., M.Phil., C.G.C. & Lindsay Hohsfield, Ph.D., University of California

Support sessions

Symptomatic family members: symptomatic individuals only
Asymptomatic, at-risk family members (2 groups)
Supporting family/friends of symptomatic individuals
Supporting family/friends of asymptomatic individuals
Grupo para hispanohablantes