2016 DIAD Family Conference: Too Young to Forget
Sponsored by the Dominantly Inherited Alzheimer Network-Trials Unit (DIAN-TU) and the Alzheimer’s Association
Held in July 2016, the international conference gave DIAD families the opportunity to meet face to face and learn about the current state of research.
Presentation videos and pdfs
Introduction
Speakers: Randall Bateman, MD, Washington University School of Medicine, St. Louis, MO and Maria Carrillo, PhD, Alzheimer’s Association
Family presentations
Living with early onset AD
Experience participating in research View pdf »
View from a young family member/ADVOCACY View pdf »
Caregiver Perspective View pdf »
Alzheimer’s overview
State of Alzheimer’s disease research (pdf)
Speaker: Serge Gauthier, CM, MD, FRCPC, McGill University, Quebec, Canada
View pdf »
DIAN Observational Study and DIAN-Trials Unit update
Speaker: Randall Bateman, MD
View pdf »
The DIAN Expanded Registry
Questions and answers
Global AD ecosystem, advocacy and public policy
Amplifying the voice of those with early onset AD in the context of global activity (pdf)
Speaker: Yves Joanette, PhD, FCAHS, World Dementia Council
View pdf »
Drug development and approval
Joint pharma presentation on advocacy (pdf)
Speaker: Rachel J. Schindler, MD, Pfizer and Johan Luthman, MD, PhD, Eisai
View pdf »
Drug re-purposing for use in AD population (pdf)
Speaker: Barry D. Greenberg, PhD, University Health Network, Toronto
View pdf »
Panel discussion
Speakers:
Health Canada: Maribeth Lazarro, PhD
NIH: Laurie M. Ryan, PhD
FDA: Billy Dunn, MD
Pfizer: Rachel J. Schindler, MD
Eisai: Johan Luthman, MD, PhD
Emerging research topics
Non-pharmacological approaches and modifiable risk factors
Speaker: Carl W. Cotman, PhD, University of California, Irvine
View pdf »
Caregiving and long-term care
Short and long-term options, managing challenges, caring for the caregiver, Q & A (pdf)
Speakers: Sam Fazio, PhD, and Beth Kallmyer, MSW, Alzheimer’s Association
View pdf »
Legal and financial matters
Power of attorney, financial planning, insurance, Q & A (pdf)
Speaker: Judith A Wahl, LLB, Advocacy Centre for the Elderly
View pdf »
Ethical issues in Alzheimer’s disease genetics and biomarker disclosure
Speakers: Jason Karlawish, MD, University of Pennsylvania and Joshua Grill, PhD, University of California, Irvine
View pdf »